My wife has brain cancer :(

I know it has been a long time since I posted. My art has fallen by the wayside. July 11, 2016 my wife went into the ER because she was having trouble talking. Next thing we know she was having a tumor removed from the left side of her brain (that Thursday). Pathology came back on the tumor – it was a GBM. A grade 4 (incurable) glioblastoma multiforme. The most deadly of the brain tumors. It has been a roller coaster ride since then.

I am on here today to promote my go fund me account set up to help us with Laurie’s treatments and getting her a deck.

Here is the link to the account – help Laurie

Thank you so much for even just looking.

This is not the kind of walk I want to ask anyone to take with me.

Alex

 

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Not so easy

When I revamped my blog I had every intention of posting daily. I am finding that is not an easy thing to do. It is not because I don’t have anything to post. My mind is filled daily with stuff I would love to get out of there and down here. It really isn’t about not having the time. I spend a lot of time playing Forge of Empires, Candy Soda Crush, plus a few other facebook games that I do in the morning. So what is the problem?

I think part of it is energy. It takes a great amount of energy for me to do anything that requires a mental effort. It is one of the CFS (Chronic Fatigue Issues) I deal with. Physical exertion drains it too, but I seem to recover from that easier.

Right now I am dealing with a lot in my life. We have adult children who have moved in with us and that is not a positive thing. My wife is dealing with withdrawal from her anti-depression medicine and it has been a nightmare for her. She is my world and I will not let her go through a minute of this alone. I have not fully dealt with the loss of my twins (that is a separate post). We sold our acreage and moved back to the area my wife grew up – this was a positive thing, except the move was a nightmare.

I have been sick 26 yrs and just about 9 mths (on the 13th). In all that time I am still reminded daily of the limitation of my illness. I still try to a normal life. Each and every day my body reminds me how foolish I have been. That is what makes doing this blog daily not so easy. I will sit in my office/art room and not have anything to do but write this blog. What keeps me from doing it is the mental exhaustion I am feeling. Today I have pushed past it and written this one. I am hoping I can keep it up.

Thank you for the patients, your time, and your ear to bend.

Enjoy the walk and don’t forget to look up and take in the wonderful colors the world has to offer.

Alex

Seeing a new Doc

So this is my first rant and it is about seeing a new doctor.  My wife and I had to switch doctors last month for several reasons being location and cost.  So the new doc filled all our prescriptions except for one of mine.  I didn’t worry about it since the medicine can be got over the counter and I only do the prescription because it is cheaper.  It is naproxen (Aleve).  So today I called the doc’s to get the prescription called in and found out that he doesn’t want me taking it daily.  Well good for him since he is not the one is chronic pain.  I have chronic muscle and joint pain because of the Chronic Fatigue Syndrome.  I also get headaches.  If I do not take an NSAID then I can not sleep at night (even with the pill I take for sleep) and spend the night tossing and turning in pain.  I also can barely move at times because of the muscle pain.

I hate going to a new doc and having them try and fix something that is not broke.  My  stomach is fine so please give me my naproxen.  I have been ill since Jan of 1989 and I know what works and doesn’t work.  I am functioning so leave well enough alone.  The last new doc messed with my stomach meds and I ended up in a lot of pain till I got back on the right meds.  He also messed with my sleep meds and screwed me up there for awhile too.  If it is ain’t broke stop trying to fix it.  Now I am worried he won’t want to get my testosterone refilled because of all the possible problems with that – sheesh.

So that is my rant for the day.